Johannesburg (AFP) - Thando Hopa
grew up in the shade, her porcelain skin protected by long sleeves and
sunscreen until the day the South African decided to fight prejudice
against albinos by becoming a model.
Petite and born
with an inherited depigmentation of her skin from head to toe that can
lead to discrimination and even death, Hopa entered the fashion world
without the usual vital statistics required of a catwalk model.
Ghostly,
with no make-up bar vivid fuchsia on her lips and hair sculpted to a
magnificent bleached height, she exploded onto the cover of the first
Forbes Life Africa back in 2013.
"It's one of the most beautiful
pictures I've had taken," says Hopa, though it took years for her to
grow comfortable with a bare face, her pale eyebrows almost invisible.
"I
was much younger then. I could never go out without make-up... But as
time goes on, your confidence just grows," she says. "It took years for
me to get to a point where I could walk around without make-up."
Hopa
is a lawyer operating in the heart of Johannesburg, not far from the
offices where Nelson Mandela worked as an attorney in the 1950s.
- 'The most beautiful little girl'
"I
had been approached to do modelling before, but I didn't go for it
because I never saw the benefits. I thought, 'It's such a shallow
profession -- why would I want to do that? I am a lawyer.'"
But after crossing paths with designer Gert-Johan Coetzee in downtown Johannesburg in 2012, she began thinking differently.
"Gert
came to me and asked me if I would like to do a shoot and I said I
would consider it," recalls Hopa. "And then I spoke to my sister. And my
sister said to me, 'Don't look at modelling as modelling. Look at it as
an opportunity for you to actually change perception of albinism.
Remember how you grew up. Remember how people really treated you.'"
The
third born in a family of four children –- her youngest sibling was
also born with albinism –- Hopa grew up with seemingly little to
complain about, doted on by a filmmaker mother and an engineer father
who never missed a chance to tell her she was "the most beautiful little
girl".
"I had been approached to do
modelling before, but I didn't go for it because I never saw the
benefits. I thought, 'It's such a shallow profession -- why would I want
to do that? I am a lawyer.'"
But after crossing paths with designer Gert-Johan Coetzee in downtown Johannesburg in 2012, she began thinking differently.
"Gert
came to me and asked me if I would like to do a shoot and I said I
would consider it," recalls Hopa. "And then I spoke to my sister. And my
sister said to me, 'Don't look at modelling as modelling. Look at it as
an opportunity for you to actually change perception of albinism.
Remember how you grew up. Remember how people really treated you.'"
The
third born in a family of four children –- her youngest sibling was
also born with albinism –- Hopa grew up with seemingly little to
complain about, doted on by a filmmaker mother and an engineer father
who never missed a chance to tell her she was "the most beautiful little
girl".
But even in South Africa, where
reports of albinos being murdered and their organs trafficked are
extremely rare, she encountered prejudice and misunderstanding.
Strangers
hugged her as a symbol of good luck, others spat to fight her bad luck.
Teachers misread her poor eyesight -– a side effect of albinism –- as
her being mentally challenged.
- 'When you were born I was shocked'
Hopa
uses a magnifying glass to read, is not allowed to drive, and shuns
stilettos. So her first jaunt down a catwalk was something of a miracle.
"The
dress was gorgeous –- black and green. I can tell you, I have never
felt so expensive in my life. But I was actually so scared because in
essence that was the first time I really walked in heels. I was even
saying a little prayer when I was walking, 'God, please don't let me
fall on this catwalk!' I was absolutely frightened."
For
all it's brought her now, there was a time when Hopa was distressed by
the realisation that she was different, when as a self-conscious girl of
12, increasingly aware of boys and her changing body, she ran to her
father in tears.
"I came
crying, and I said, 'Why am I not like other children? Everybody makes
fun of me and I have to wear these stupid hats, and I always have to put
on sun cream.' And I was crying and crying.
"And
you know, my father is a wonderful man, but he doesn't really know how
to deal very well with emotions. So he looked at me, and said, 'My
child, let me be honest with you: when you were born, I was also
shocked!'"
It's a memory she can laugh at now she's 25 and confident.
"On
that day, more than anything, I wondered if my life would be different,
if people would have treated me differently. But I could never picture
myself looking different even now."
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